Wednesday, September 7, 2016

Something Far More Shocking Not Leukemia

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The day was a crisp, middle-Tennessee, autumn day.I was at work at a local manufacturing company, in my small hometown of less than 1,000 residents. The week prior, I had traveled into Nashville, Tenn., to see an oncologist, because it was thought I may have leukemia, because of the symptoms I had been having for the past several weeks. It turned out it was not leukemia, but something far more shocking.

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The day was Thursday, October 24, 1991. The time was 11:07 a.m. My supervisor called me into the office, telling me that I had a phone call. The oncologist I had seen the week prior told me right away that the HIV test I'd had in his office had come back positive, I had five to seven years to live, and, he suggested I find a doctor who would treat me.

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The room began to spin in slow motion. I hung up the phone, not fully aware of the news I had just been given, but aware enough to know that I felt my life as I knew it was over. In my hometown, I knew no one who was living with HIV, nor, did I want my local doctor, or anyone else for that matter, to find out that I had contracted HIV. I spent the rest of the day in somewhat of a daze. I did not leave work, but rather I finished the day at work somehow, without completely breaking down.

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I left work, contemplating suicide, for I felt I could never face my family, or have them dealing with what I had allowed to happen to me. Little did I know that I would become the local face of HIV/AIDS.

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I did remember a name of a lady, an HIV/AIDS counselor, in a town about 25 miles away from where I lived. I got in contact with her, and, it was with her help, and that of an HIV/AIDS support group, that I began to see that I was not alone, in learning to live with my new "normal."

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Flash forward three years from that October 1991 day. It was with the passing of time, and with the help of others, that I began to understand my place in the world. After the deaths of several friends, with my "Circle of Friends" HIV/AIDS support group, and one friend in particular, I made a decision I thought I would never make. On World AIDS Day 1994, I was a featured speaker at a local World AIDS Day Education Awareness event. It was on that day that I "went public" with my positive status.

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 My story and picture was front page news in the local newspaper; I was on TV and radio, telling the world my story of learning to live with HIV disease, and that I was going to use an unfortunate situation and turn it into something positive (pun intended).


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Today, June 2013, at age 51, I live openly with my HIV/AIDS status, and still speak to various groups and organizations about life with HIV/AIDS in small-town USA. It has been and continues to be a blessing in disguise. Never one to be any kind of speaker, and actually a quiet, shy youngster, I have grown into my own skin. I am my own voice, and a voice for all those who passed away over the years.

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It was that day one, in 1991, that set me on the journey that continues today. Twenty-three plus years of day one!

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